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Life in Lockdown – an article by one of our young patrons Josh Burgess

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My experience of lockdown have been unique. I have been shielding for almost a year, which has been very stressful for me and my family because myself and one of my brothers are classed as being clinically extremely vulnerable, so we can not come into close contact with other people.

I have a condition called PCD which effects my lungs and hearing, as well as RP which effects my vision. I have to go into hospital regularly to get IVs to help my lungs. I have had 3 hospital stays since the start of lockdown last March.

Normally when I’m in hospital for the two weeks of treatment, there are special play therapists that would come in and help by entertaining me and taking my mind off things. There is a music therapist that helps me loads, music helps me to express how i feel about myself and it’s my outlet when things are going wrong, but due to COVID-19 a lot of the play workers aren’t allowed to come round in person so there is less things to do to pass the time.

COVID-19 has effected my social life massively. I’ve missed going to school, seeing my friends and going outside this past year. My school have been very supportive in trying to keep me learning and interacting with my classmates remotely.

Not every thing is bad though, before lockdown and the pandemic I felt like me and my family could not spend a lot of quality time together, so in a way i am grateful for the lockdown.

I’m not to sure what is going to happen about the vaccines for children and when i can stop shielding but i am sure what ever happens in this world as long I am with my family I know I will be safe.

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