[et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.9.1″ _module_preset=”default”]

Anna Kennedy needs you to complete this very important survey: Who will look after my sons when I am no longer around?
Click here to sign and show your support.

[/et_pb_text][et_pb_text _builder_version=”4.9.2″ header_text_color=”#8300E9″ header_2_text_color=”#0c71c3″ header_3_text_align=”center” header_3_text_color=”#8300E9″ header_4_text_color=”#8300e9″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” vertical_offset_tablet=”0″ horizontal_offset_tablet=”0″ animation_style=”zoom” hover_enabled=”0″ z_index_tablet=”0″ text_text_shadow_horizontal_length_tablet=”0px” text_text_shadow_vertical_length_tablet=”0px” text_text_shadow_blur_strength_tablet=”1px” link_text_shadow_horizontal_length_tablet=”0px” link_text_shadow_vertical_length_tablet=”0px” link_text_shadow_blur_strength_tablet=”1px” ul_text_shadow_horizontal_length_tablet=”0px” ul_text_shadow_vertical_length_tablet=”0px” ul_text_shadow_blur_strength_tablet=”1px” ol_text_shadow_horizontal_length_tablet=”0px” ol_text_shadow_vertical_length_tablet=”0px” ol_text_shadow_blur_strength_tablet=”1px” quote_text_shadow_horizontal_length_tablet=”0px” quote_text_shadow_vertical_length_tablet=”0px” quote_text_shadow_blur_strength_tablet=”1px” header_text_shadow_horizontal_length_tablet=”0px” header_text_shadow_vertical_length_tablet=”0px” header_text_shadow_blur_strength_tablet=”1px” header_2_text_shadow_horizontal_length_tablet=”0px” header_2_text_shadow_vertical_length_tablet=”0px” header_2_text_shadow_blur_strength_tablet=”1px” header_3_text_shadow_horizontal_length_tablet=”0px” header_3_text_shadow_vertical_length_tablet=”0px” header_3_text_shadow_blur_strength_tablet=”1px” header_4_text_shadow_horizontal_length_tablet=”0px” header_4_text_shadow_vertical_length_tablet=”0px” header_4_text_shadow_blur_strength_tablet=”1px” header_5_text_shadow_horizontal_length_tablet=”0px” header_5_text_shadow_vertical_length_tablet=”0px” header_5_text_shadow_blur_strength_tablet=”1px” header_6_text_shadow_horizontal_length_tablet=”0px” header_6_text_shadow_vertical_length_tablet=”0px” header_6_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” use_border_color=”off” border_color=”#ffffff” border_style=”solid” sticky_enabled=”0″]

Who will be there for you when I am gone?
An article from Teresa Mum to OJ Bridges our young Charity Patron

[/et_pb_text][et_pb_text admin_label=”Text” _builder_version=”4.9.2″ vertical_offset_tablet=”0″ horizontal_offset_tablet=”0″ hover_enabled=”0″ z_index_tablet=”0″ text_text_shadow_horizontal_length_tablet=”0px” text_text_shadow_vertical_length_tablet=”0px” text_text_shadow_blur_strength_tablet=”1px” link_text_shadow_horizontal_length_tablet=”0px” link_text_shadow_vertical_length_tablet=”0px” link_text_shadow_blur_strength_tablet=”1px” ul_text_shadow_horizontal_length_tablet=”0px” ul_text_shadow_vertical_length_tablet=”0px” ul_text_shadow_blur_strength_tablet=”1px” ol_text_shadow_horizontal_length_tablet=”0px” ol_text_shadow_vertical_length_tablet=”0px” ol_text_shadow_blur_strength_tablet=”1px” quote_text_shadow_horizontal_length_tablet=”0px” quote_text_shadow_vertical_length_tablet=”0px” quote_text_shadow_blur_strength_tablet=”1px” header_text_shadow_horizontal_length_tablet=”0px” header_text_shadow_vertical_length_tablet=”0px” header_text_shadow_blur_strength_tablet=”1px” header_2_text_shadow_horizontal_length_tablet=”0px” header_2_text_shadow_vertical_length_tablet=”0px” header_2_text_shadow_blur_strength_tablet=”1px” header_3_text_shadow_horizontal_length_tablet=”0px” header_3_text_shadow_vertical_length_tablet=”0px” header_3_text_shadow_blur_strength_tablet=”1px” header_4_text_shadow_horizontal_length_tablet=”0px” header_4_text_shadow_vertical_length_tablet=”0px” header_4_text_shadow_blur_strength_tablet=”1px” header_5_text_shadow_horizontal_length_tablet=”0px” header_5_text_shadow_vertical_length_tablet=”0px” header_5_text_shadow_blur_strength_tablet=”1px” header_6_text_shadow_horizontal_length_tablet=”0px” header_6_text_shadow_vertical_length_tablet=”0px” header_6_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” sticky_enabled=”0″]

Something I fret about often, but I try not to, I have poor mental health you see, I am battle weary already but if I do not do it who will? Especially if I was not here anymore…I mean who is going to remind you to clean your teeth every day when it is a massive sensory issue…who is going to take the time to understand how that even feels to you…something so simple…

You have faced so much negativity in your short life, who will be there to understand when that sunny positive mask slips because someone mocks you and you go into meltdown or even shutdown…. who will know to be patient and wait while the red mist lifts, who will give you time to process at your pace and wait to hear you and not just listen…?

Who is going to understand that you are who you are and it should be respected…a decision you reached independently but you know people still don’t respect or understand who you are because they don’t have an open mind, because they don’t get it…they still see the angry boy who cried and shouted and hit out in frustration not the incredible teenager who was struggling but is finally at peace with them self…..who will be there to help you through and continue to grow like this when things go out of routine? Who will if I am not there…?

Yes, you have your sisters, but they have careers and homes and husbands and children who need them…. where would you fit in? They would be there in a heartbeat, but they do not know all the little things that make the difference and mean you feel safe, you always need to feel safe, it helps you to cope. Things like the right way to put your food on the plate so it does not mix or touch, make sure you shower and that the dial is on the same, right temperature so that it does not hurt….

It is all about trust…you trust me, you do not trust many but what if I wasn’t there anymore and you did not know how to trust? Being an older mum, my health has not been great, and I have been in a dark place but the thought of who would be there, be able to support, fight and advocate for you fills me with dread because it is sad, but services are being cut, being stretched and are so poor it keeps me here because I will not give up but WHO actually will be there? Or would you be one of so many to fall through the cracks in adult services, a statistic, especially with the way things have been this last year during covid…

Every parent wants to see their child succeed but no matter how much independence you gain, support will still need to be there to protect you, to guide you if I could not, if I were not there, who would you trust because you need trust to feel safe. The truth is, no one knows you like I do, no one gets you the way I do, I know that you know that…the system does not because you may not tick all the boxes in the right order…

At the end of the day, we have had years of battle after battle and already most ‘help’ came too late, but you have blossomed into the most incredible human being, I just wish I could always be there for you, so you never have to feel let down.

[/et_pb_text][/et_pb_column][/et_pb_row][/et_pb_section]

Leave a Reply

Your email address will not be published. Required fields are marked *