I shared this post on social media and its been shared almost a 1000 times with many comments from parents who like myself worry about our children who have an autism diagnosis or a disability.
Who will care for my sons after I am gone?
This is a question I always have at the back of my mind when I am working as an Autism Ambassador and Chairperson of AnnaKennedyonline charity from day to day raising awareness about autism.
A recent report by Fitzroy shows:
‘Research shows that families are deeply concerned about the long-term future for their sons and daughters, including the question of responsibility for their welfare after the main family carers have died.’
‘One in three parents says that they fear for the future of their children after they are gone. After a lifetime of struggle to secure appropriate care for their loved ones, and a constant vigil to protect them from abuse and neglect, they have lost trust in the system to provide adequate safeguards when they are no longer there to oversee the process.
One parent says: “It is like a ship heading for an iceberg and nothing happening to change its course.”’
As a parent I am trying to plug every hole so that when I am dead and gone my sons will be looked after with the best path hopefully I have helped create for them .